A New Way. Can You Help Some People Who Mean Alot To The World, and To Me?

Throughout our lives, we will come to find ourselves in a lot of different places.

A lot of different rooms.
A lot of different corners.
A lot of different wheres.

Those wheres will be unexpected. They will surprise us, scare us, change everything, change nothing, and break our hearts.

I’ve found myself in some pretty amazing wheres, and some pretty devastating places. But one of the constants was having the opportunity to be part of Postmasters Gallery, and to continue to feel like I am part of their huge art family.

And that’s why I am asking you to be a Patron and help support them to keep making the artworld more radical, more daring and the world a better place to be – for us all. 

Furthermore, outside of art, The Postmasters Family helped save my life… and helped me get back onto the path of trying to live my life.  See Postmasters aren’t just a normal gallery. They’re everything and more. They’re community, they’re bravery, they’re hope, they’re protest, they’re US.

Let me tell you how, and just how their Patron rewards will LITERALLY MAKE A DIFFERENCE to YOU if you invest.

In 2008, I got to chance of a lifetime. I had decided the previous summer (2007), whilst working with steadfast ambitious & economically supported college-aged Americans, that I needed to catch up with my life and career ambitions. And my career ambitions was to be an artist and to live and work in NYC. Preferably in a gallery. This was no small-feat for an under confident, working class kid from Doncaster, UK (DONX!).

I worked at a bookies and at a toy-shop part-time during term-time,  whilst praying to the art gods that I’d get my artworld NYC summer. I did anything to make sure I could afford to go.

I remember exactly where I was when Magda of Postmasters Gallery said she’d meet me in person with the chance of getting to be Postmasters’ intern the summer of 2008. I was sat with my friend James Cotton in the Graphic Design-Apple suite at the old art campus. It was a super sunny day for the winter and the sun was blinding through the large windows. I just-re-read that same email, over & over again. I still have it archived even though I no longer have that email address (at hotmail.com?!).

I remember being incredibly nervous. I think I was practically mute for the first 2 weeks of being at Postmasters. But I learned so much.

I learnt around 26 years of Postmasters Show history, and art history in the making, as I was set to digitalizing their whole archive. Endless slides to be scanned, and amazing write-ups of artists in ArtForum, NYT, Art In America, et al – of still practicing, artists who have since disappeared, but a theme emerged.

These shows were often groundbreaking, urgent, courageous, some genuinely funny, ahead of the curves. New Media Art shows before new media art was accepted as it is today (though we still have ways to go with this medium). Women artists equally represented, and mostly – it still felt contemporary, and alive and represented the values that Magda and Tamas have sought to bring to the artworld their whole life.

I also learnt how to send invoices via fax (though still not into faxing), I met some of the coolest artists who continue to inspire my practice today, about art museums collections & how they buy art for them, at one point – I was left manning the whole establishment for a week?! and I learnt loads from Magda and Paulina’s experiences and ideas.

I was properly schooled that summer I was at Postmasters. I remember leaving after my last shift and I walked down to 9th Ave, and had to search for a working pay-phone to call my mom because I felt so sad I was leaving this amazing thing I had sort of been apart of for a short time.  I left that summer with my heart heavy but inspired.

I got back to the U.K. and art school felt kind of boring after that experience. I had to do something. Magda taught me that literally, anything is possible, even starting from scratch, along as you have perseverance, some people and community who can support you.

So my friends and I started our own lil’ artspace called CAKE (rebranded CAKE Everyone). We were a small space above a bar on West Street, Sheffield, UK. We lasted around 2 years and we learnt loads and had so much fun. But the thing is, I took everything I had learnt from Magda & Postmasters, and I put it into action in Sheffield – and invested it back into our local community.

I am still employing these lessons from this time into my life and practice.

Now, it would be easy to say – I became, like, an awesome artist, or got lots of gallery jobs… but because i’m not very smart or that talented, that didn’t really happen (and that’s ok!). But the year after I graduated was HARD. I nearly lost my own belief. But Magda offered hope and advise on the end of emails. That really helped me push through what I thought was a dark time…

Then things started to work out… I got a residency at SITE Gallery, I was working freelance as an illustrator, doing some university lecturing… I came over to work a summer in Boston/New Hampshire in the U.S.A.  but I had been feeling poorly for a good few months before I went… tired beyond belief, coughing up blood, endless nosebleeds, bone-pain, flu-like symptoms, drenching nightsweats.

And on the 21st August, everything changed. I found myself sitting in front an oncologist at General Mass Hospital. With my YMCA boss, 3,000 miles away from home. The doctor cleared his throat a few times and told me it looked like Lymphoma… Cancer. He told me, if it was time-sensitive and I didn’t get it sorted then I would die.

Well. As you can imagine, that wasn’t the news that I was expecting. I didn’t tell my mom for weeks (I was only 24). I felt ashamed, I don’t even know why. I thought it couldn’t be true. I googled the odds every-single-day. My boss kept telling me I needed to go home. The only person who I decided to tell who I didn’t work with — was Magda.

Because Magda was a person I knew I could trust, and always has a no bullshit take on everything but has an aabundance of empathy too.

After a crazy 32 U.S.A. state roadtrip (yolo!) Magda & Tamas put me up at their place, Magda cooked me an amazing breakfast before I left the USA for unknowns at home, not knowing whether I’d make it back again.

But the story is more complicated.

Magda nearly saw me go under. A few times.

I just had no energy. I laid in bed. Feeling sorry for myself. I was in pain. I was really sick. I couldn’t even watch Netflix. But Magda & Paulina would send reassuring tweets and emails and I slowly kept it together.

I worked harder at building my art-practice than on anything in my life, though it never felt like work. I devoted myself to it, though it never felt like sacrifice.  I am also endlessly grateful. Those years gifted me experiences, skills, lessons, and friendships. I would not be me without them.

Many forget that it’s a rare privilege to find something you care about so deeply and be able to make it your life.

I had struggled to get back, but my heart wasn’t in it in the same way.  I simply craved a new challenge. It didn’t matter why — I couldn’t lead  my life in the same way, and I had promised myself that I wouldn’t be caught without a plan if something happened to me again.

I realized I couldn’t have my old life back, but I also didn’t want it anymore.

So I decided to go into healthcare… radiotherapy & oncology! Of all things. But I’d kept all this secret from most people. It was furtive, shadowy work, and the secrets made my stomach ache.

 

But I reached out to M, and I hoped that she would still think I was an okay person.

The wild thing is, Magda still helped me through emails – giving me incredible advise and inspiration for my healthcare practice. To the point that I realized that I was still a fucking artist. I had got lost, but she never stopped helping me find the tracks back. I’m now doing my PhD combining all of my double agent status’ together. Just insane.

But here’s the thing about the Postmasters Fam., is that they don’t let you down.

Magda once said to me that we get dealt the cards that we get dealt, but we play them like they’re fucking Aces.  She has taught me that experience is subjective. We get to decide what’s devastating, what’s beautiful, and what we do next. In the books of our lives, we are both protagonist and narrator. And narrators have incredible power.

In writing this, I thought a lot about the places that shape us, and how, in turn, we shape those places in our minds. Postmasters have really shaped my life, in so many ways.

As human beings living on earth right now, we find ourselves in a very particular where.  The art-world mostly sucks, because it works for the 1%, lets not even talk about politics.

But this is something we can all help, maintain, and be a part of. Help sustain the legacy, help to make the future, help to secure a better history. Look down at your feet and decide what that means.

Instead of being afraid, I’m going to try to be brave. Instead of feeling regret, I’m going to focus on getting better tomorrow, and instead of hoping that someone else will say it or move it or mean it, I’m going to do it myself.

Postmasters has been there for us (in ways you might not even know yet!) so lets me THERE FOR THEM!

And as I’ve just shown you, the $100 or $500 a month reward will LITERALLY CHANGE YOUR LIFE. I can’t stress enough how much its worth it.

Let’s make art, and friends, and purpose, and be good to each other. And please spread the word!

If you got this far – Thanks!

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Launching A Radiotherapy Story

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About a year ago, I saw a really cool website from Canada about the Faces of Healthcare.

And I thought, wouldn’t it be cool to have something like this for radiotherapy, and the surrounding services (which is essentially pretty much EVERYTHING in the NHS). Oncology is very much one of the most inter-disciplinary areas within healthcare, ever. From dietitians, counsellors, all different types of doctors, dementia care, mental health, social workers, GPs, ambulance drivers, nurses, students, volunteers, etc — it’s endless! Trying to seamlessly work together to provide the best patient care and experience.

It is for this exact reason why I believe we should celebrate our profession and our patients and their carers and loved ones, and for every single person who is involved within the NHS. Because without them, we’d be a bit lost.

The receptionists who make sure patients get to see the people they need to see. The porters who take the patients to Boots and reading every single sandwich ingredients to the patient. To the volunteers who run Bridge Clinic, and provide unlimited biscuits. To the student who helps someone on and off the toilet… it’s literally endless.

So many people don’t know about radiotherapy. So many patients find the process quite anxiety enhancing due to the lack of personable, friendly, understandable and in-date information online coming up to their treatment.

And as I’ve gone through my training I’ve seen some truly compassionate stuff and heard some amazing stories – of all types. The stories from patients that have stuck with staff, the stories that made staff go into the profession and stay when things have been or become tough.

Patients have been some of my best teachers throughout my training, but some of those lessons have been hard.

And I’d love to share these stories with you. Because everyone’s story deserves to be heard. And i hope through reconstructing these narratives together, we can empower our experiences.

A Radiotherapy Story is photo-documentary on kindness and trauma, on team-working, on suffering and on truly living. On being part of something bigger than yourself.

We want to share with you the stories of these people, of the NHS, to celebrate the pinnacle of humanity and kindness. Of life and death.  I hope you’ll enjoy what we’ve made.

http://www.radiotherapystory.com will be launched in 2 weeks time.

And if you’ve got a story in healthcare that you’d love to share, let us know! Contact: smizz at smizz@sarahsmizz.com or @smizz on twitter.

The project is run by me and Harri Slater.

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Tomorrow belongs to those who can hear it coming

I recently received some incredible, completely surprising and insane(-ly good) news. 

As previously written on a few blog posts, I had applied for a PhD – not ever thinking I’d even get shortlisted, but I was happy with the learning process itself. Pushing myself forward, keeping my options open.

Before I fell poorly, and my life got all shook-up, I had an art practice-led-PhD proposal on my desktop for about a year. I wondered if I would ever be brave enough to submit it.  It was – at the time – something not super well researched. It was about Artwork and labour, and the dark-matter of the artworld – I was hoping to build upon my peers and artists who I greatly admire’s work – such as Gregory Sholette’s political activist artwork, like 1980’s PAD/D and his thesis on Dark Matter (which is one the best books ever on the subject IMHO); William Powhida’s  incredible practice on the Artworld power and structures; ARTWORK by Temporary Services; AREA Chicago’s work (that I was so lucky to have been an intern there in 2009 in Chicago, USA – under incredible people), Olivia Plender, Charles Avery, Tino Segal, ect ect.

 

But something didn’t feel right about this proposal.  Part of it was the proposal itself, and another part was probably my self-doubt, was I smart enough to do it? Could I justify my proposal?  And so I never submitted it. It didn’t matter much anyways, because the shit-hit the fan and the months proceeding this – my perspective changed after my life became obviously more temporary than I had imagined at 23/4. And I was left,  broken. My plans, my lil’ confidence I had left and my future-vision even more broken.

Art & Labour  became irrelevant to me, and with the recession and the popularity increase in socially engaged practices (yay!), my once some-what original PhD enquiry into art and labour became hot-topic. Diminishing any hopes at looking at it in the future.

I’ve never recovered from this illness experience. And I felt like I lost a part of who I was. For both better and for worse.

 

My desire to do this art & labour PhD got replaced  by my desire to change healthcare practice for the better. To make the patient pathway better.  As described many times before in these posts – my personal experiences mixed  with having this intuitive feeling about art & designs possibilities in creating a better healthcare experience and system – whether through designed medical devices (think IDEO), to architectural planning of spaces, art-therapy, using creative ways to map the patients experience or journey to generate things, to app-design and virtual reality. The possibilities are completely almost endless. It’s so exciting, but I also don’t think culturally we’ve got there to accepting it as one of our best tools (of many) to make things better.
So I re-trained, in radiotherapy & oncology to help me be part of the system to make sure I always listen to our patients and I felt that radiotherapy was this area that’s open to innovation.  And I’ve had a blast. I’m actually really good at what I do, who knew? I sometimess get 98-99-100% in my assessments, and I often get compliments & recommendations off my patients about my care, not too shabby for someone without any science background. I’ve learnt a lot about myself in this process, and built my knowledge and skill set further. And I feel such a good part of the teams I work with in the clinical setting.  But it has been ridonkulously hard. There’s no denying this. Especially whilst trying to juggle part-time work, and crappy health-issues. It’s been a battle. A healthcare course really tests you, and your resilience.
 

I felt that being an artist, I could use all my criticality skills and creative abilities to make this change. I felt that art had a place here.And i’ve flexed it out:
I made the first ever radiotherapy patient info app & won a bunch of awards.
I made the A-Z radiotherapy handbook comic
I made the faces of healthcare website of stories
I made an interactive radiation oncology revision group using twitter, storify, google docs and tumblr.
I made the first ever student-led conference dedicated to radiotherapy & oncology.
And a bunch of other things, which you can see here: http://radiotherapysmizz.tumblr.com/

 

Then I saw a call out for PhD proposals.
I was amidst in applying for radiotherapy jobs. I had been told that some of my ideas were “just too ambitious” in my first rad job interview, and then a few weeks later an informal chat with someone who previously worked in clinical-practice told me that: “I need to stay within my band, it’s not a band 5’s role to think of making things better”. Which started to give me a sinking feeling.
I’m a true believer in transformational leadership – whereby everyone – whether a porter, or service user, or volunteer, or student, or band 5 or band 8 HCP – can suggest an idea to make things better – because they’re the ones who experience the system in their way. And may see it from a different perspective – and that we all have equal responsibility: to practice safe and compassionate care. And to work together – effectively and collaboratively – to make things better. It doesn’t matter where you stand. As Judy Hopps says in Zootopia (AN AMAZING MOVIE THAT YOU HAVE TO SEE!) “Life’s a little bit messy. We all make mistakes. No matter what type of animal you are, change starts with you.”

 

So, I emailed my amazing Radiotherapy professor – Heidi Probst – and told her how I really saw creative practice/methodologies as a way to make change in healthcare. She instantly helped me out, said she’d be willing to talk through things. She pointed out her call out for breast/trunk odeama  (something that had come up with my app with a previous patient who was on an award panel – as I hadn’t included it in the side-effects – showing specifically why this needs to be researched as we’re not really taught about it in practice -i hadn’t really thought about it) and the quality of life issues associated with these patients – and we discussed how a creative way would be able to bring out these narratives – in a way that more well-known scientific qualitative methods aren’t able to do. To really make the people heard.
 

Sheffield Hallam has a unique research center called Lab4Living – it’s this super cool place that combines art & design practices to healthcare research. It’s a collaboration between art & health & wellbeing. So I saw this proposal sit right in the middle. A collaboration – and interdisciplinary investigation – with an outcome of a rich diverse narrative in many visual forms – it would be both art and health. I was advised by a bunch of academics to submit it to both departments – both art & health – because it was both, after all – and I felt that I’d do the same kind of work where ever I was based. So I did. I submitted the same proposal. Not expecting ANYTHING in return. No shortlist. Nothing. Just this increased knowledge that this massive gap in patient information and care exists for breast/trunk odema.

And honestly – for about a month – I thought of nothing more other than the plight of these people. I began to see people with trunk swelling on their posterior thorax with no advice in clinical practice. And this whole experience intensified something. Like when my eye doctor gives me option “1 or 2” when he sets my prescription, I suddenly saw option 2. It feels like it has heightened the stakes somehow -— reminding me repeatedly how precarious life is, and how every act is a contribution to a finite set of acts, that should be contributing to a bettering of the world (in whatever form that takes). Thinking constellations and not just stars.

Then I got shortlisted in 2 departments – and I panicked. I never envisioned this to happen. in-my-wildest-dreams!

So, after feeling like I was betraying both departments – I interviewed in both departments – each time feeling like I had let myself and the people who had given me this chance down. Both departments asked for 2 different kinds and types of presentations. PhD interviews are really hard to judge! I expected my chance to end there.

I don’t really know what happened in between.

There’s a quote that I’ve been thinking about for a long time, about having to let go of our planned life, to allow us to get to the life that’s waiting for us.

And when I fell sick, I let go of my planned life. And I went into radiotherapy but for a long while i just didn’t know what was waiting for me. And that has been one of the hardest parts. I now feel like maybe this is what’s been waiting for me. This beautiful combination of practices – both creative and health.

“You don’t understand anything until you learn it more than 1 way.” —Marvin Minsky

After much soul-searching. And I mean, really soul searching. I decided art would be the best place to sit – for the freedom. Though this decision did not come easily.

Getting this fully-funded PhD scholarship in art feels like I’ve come home. I’ve been lost, but I’ve been found. Changed but not fully forgotten. For a few years now I have been caught up between all that was and all that could have been and be. You feel lost.  As soon as the bones mend, you forget about the fracture, but you don’t forget that experience that lead to it.

It’s a bittersweet moment because I wouldn’t even be here if it wasn’t for Heidi’s help, and I wouldn’t even be interested in making healthcare better through creative methodologies if I never fell sick in the first place.

My great friend Magda pretty much sums  up the bittersweetness perfectly with her quote to me: “Life sometimes gives us lousy hand of cards and we play it like it was fucking aces!! that’s what we do.” Someone make this into a motivational poster.

It is at this juncture that I want to REALLY thank all the people who has made this possible – a reality- Heidi, Alex Robinson,  Jo Doughty, Laura P –  all the people in art – Becky Shaw, Kathy D, Penny M, Claire — so many, many other people  – ALL OF MY FRIENDS & my mom & nan & bro – for all of your help. For taking a chance on me, for believing I could do a PhD, for inspiring and advising, for your belief in making healthcare better. For hoping for a better future for these patient. For all the talks, for all your time, supporting me. For taking a risk.

I am endlessly grateful. I know I wouldn’t be here now if it wasn’t for these people. I never take anything for granted and I feel like I can never repay y’all.

For everyone whose had a dream, and for all the working class kids who get told they can’t even make it to university — this is for you. We can do this.

Tomorrow belongs to those who can hear it coming.

My new chapter begins in September. And I am SO nervous.

No risk, No adventure.
To innovating healthcare by focusing on people & their experiences!

Your good friend,
Hopefully, future Dr. Smizz 😉

PS: my radiotherapy career isn’t over either.

 

 

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I don’t want to waste any more of my time. That’s all: A look back upon my 2015

 

Smizz’s top movies from 2015

So each year I do my top 10 movies. 2015 has been a great year for females. So many strong female-led movies. And it’s about time!

I love going to the movies, i love the anticipation of waiting to see a movie. However, this year I didn’t get much opportunity to see as many arthouse flicks as I would have liked, and this top 10 list reflects that. Now, each movie in my top 10 has a place – for it’s individual reason. So it might not be the *GREATEST* movie of the year, but it certainly achieved something for me in an area such as character development, or dialogue, or cinematography. ect. Sooo wasting no more time.

 

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10.) Mad Max: Fury Road.  Unhinged, high-octane vehicular mayhem. A tough-as-nails postapocalyptic feminist heroine bitingly portrayed by Charlize Theron. (And hey, Tom Hardy was pretty good too as the titular hero.) A crazed ride into a monumental, lightning-etched storm with the pedal all the way to the metal while a war boy howls “Oh, what a day … what a lovely day!” Unforgettable movie moments are made of this. And to think the picture was made by a director in his late 60s. George Miller, you are the (aged) man for the ages.

 

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9.) Carol. A breath-takingly beautiful cinematic journey of a forbidden love. Filmed as if an Edward Hopper painting had sprung to life, its mood washes over you in an evocative mix of opulence and despair as it dizzyingly dances with the forbidden. Some of the best scenes are filmed from the perspective of a person looking through a car window. 2015’s best romance.

 

 

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8.) Tangerine. This movie feels the most 2015. Shot entirely on iPhones and with a budget that wouldn’t cover cab fares on a blockbuster, Sean S. Baker’s indie dramedy makes virtue of necessity. Compelling filmmaking, too, in this Sundance sensation about transgendered sex workers, a pimp, cabbie and angry mother-in-law in lowdown L.A. Doing whatever it takes to make the invisible, visible.

 

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7.) JOY: Joy can be viewed as a modern day rags-to-riches fairytale. It’s Cinderella without the prince. In a way, that’s part of the film’s charm. Sure, there’s preposterous dialogue, but there are also so many electric sequences that made me lean in, smile, & care about a mop. It does give hope showing that no matter how one does struggle in life miracles of success are possible, so don’t read all the bad reviews and assume otherwise.

 

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6.) Steve Jobs. Side-stepping arguements about the accuracy of the biopic, the real achievement here is making cinema out of material that isn’t even a stage play as much as very expensive radio: a battery of dialogue, unbroken by reflective pauses or even, on occasion, the actors drawing breath. The staginess of the movie is its greatest benefit, allowing the characters and the dialogue to shine. Boyle, however, is not a director to be contained in dry rooms, and he allows this theatrical drama to move, via music and editing, into the realm of real cinema. It may be stagey, but make no mistake, it crackles and moves like a motherfucker.

 

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5.) Spy. Now i love a good comedy, but great comedies are hard to come by these days – and I feel like there’s less and less comedies being made due to their hard task. Spy makes making seemless comedies look super easy to make. Feig keeps his Spy machinery cranking so smoothly that nothing said or done feels as outrageous as, in fact, it is. McCarthy is the star of the film, but her willingness to let her fellow actors shine when an opportunity knocks to give the audience a belly-laugh is clear, and it’s the undeniable strength of the supporting cast that makes Spy a strong a film.

 

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4.) AMY. I was taken aback by how well an thoughtful this documentary was made. Watching Kapadia’s film, it is possible to see how badly she was let down by the male figures closest to her. it’s the music that suddenly feels monumental because somewhere in that dark stream of rolling notes and rumbling minors, we can hear the eternal soul of human sadness turned, for a brief moment, into something undeniably beautiful.

 

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3.) Inside Out. It’s an emotional rollercoaster, and it’s one of pixar’s finest. It takes a long walk down an infinite pier of personal identity in,  an animated tour of developmental psychology that captures the pain of growing up using primary colours and Amy Poehler’s voice.  As for visual style, it’s dazzling, flouting CGI’s tendency to photorealism in favour of overt cartoonishness in a 1950s retro vein, together with a refined exploration of light: the emotions are composed of fibrous bundles of luminescence.

 

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2.) 45 Years. An inner drama, taking place inside the characters. There are no heroes or villains in this film. Shot with loving attention to the silent vistas of the English countryside, 45 Years conveys a sense of isolation, of two people being together yet growing apart, a dream that has been shattered, and a lifetime of security undermined by a moment of doubt. It is a thorny subject but beautifully told with gentleness and love. Plus 2 outstounding performances.

 

 

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1.) The Martian. I actually can’t stop thinking about this movie. A fan of the book, I wasn’t sure how the motion picture would compare, and indeed make the main character-likeable. But yeah, there’s flaws. But there was something about The Martian that captured the 12 year old in me. Damon makes the most of this “me time”, engaging our interest, winning our sympathy and teasing our anxieties about his perilous predicament. Whilst the most surprisingly element about this movie was the screenplay.  What makes the movie unique to me was Watney’s optimistic point of view. He believes that he isn’t going to die on Mars, and this transforms this rather depressing situation into something comical instead, engaging us with many self-help survivalist discoveries. But when you really think about it, this is a very personal film about some people coming together to save somebody. That’s it. And in today’s world, it’s nice to hear an story about people coming together to save one of their own. It might take all the romance out of Mars, but substitutes in its place science, cooperation, and human perseverance. PS: You should read the book too – and check out the author’s videos on how everything is correct including the astrophysics!

The Heart of The Matter: Hope.

About 2 weeks ago I found out that I’ve been shortlisted for another award, this time for — “Most innovative student-driven digital tool” — for the design of my *future* Radiotherapy Treatment Patient Information App – “RADcare”. And I’m still blown away by the shortlist. I don’t think I’ll win, but this definitely feels like one of my most proudest moments of my life so far, and I don’t know why? I’m just so honoured and surprised by being shortlisted!

My story is one we can all relate/resonate with. I got stuck. Like, really stuck. I encountered an illness I never saw coming – and for the first time in my life – felt really lost, and out of control.  At such a young age too, in the middle of building my artist career, and shaping the rest of my life. I felt so misunderstood. And when you’re not understood, you feel almost worthless. Dealing with these feelings on top of very distressing symptoms whilst trying to continue to run your life as normal as possible is actually really hard.  I had experiences with the healthcare system – both amazing and poor. As a patient I often felt powerless, stupid, a hindrance — and ultimately — voiceless. This lead itself to personal anxieties. Sometimes I felt like no-one cared. (But this was not true at all). But also I got treated every-now-and-again-like family. Like an old friend, with kindness, love and care. I’ll never forget those moments. And I soon realized that, that’s all I wanted to do; To make people feel cared for & important, and needed, and even loved. And as with my art practice, all I’ve ever wanted to do is make a positive difference. To help people. To make people think, think of the injustices, to act upon these inequalities, to feel better, to make the world a better and more just/equal place. People are struggling all around us. Every single one of us has something we’re struggling with each day – although the degrees of struggle are massive.

People need people, and they need truth, heart & hope. Authenticity wins, every time.

I look to the world around me, with this continuing experience in hand. And I see that we need coffee shops, sunsets and roadtrips. New & old songs, planes, trains and food. Fast internet connection & Twitter – but most of all – we need other people in our lives.  And at some point in your life, you will need to be that “other” person to someone else who needs you. You will be their living breathing, screaming, invitation to help them believe in better things.

We do not know how long we’ve got here. We don’t know when fate will intervene. What we do know is that with every minute that we’ve got, we can live our lives in a way that takes nothing for granted. We can love deeply. We can help people who need help. We can teach our children what matters, and pass on empathy and compassion and selflessness. We can teach them to have broad shoulders. And that’s all I want, really.

My friends say that I’m a “Smizz of all trades, master of none” – because I go out of my way to learn new things if I can’t understand it. That’s why I do work in all areas, from art, to printing, to photography, to web and app coding and designing – I’m very well read in political & economics too – and now radiotherapy/healthcare.  If you’re unhappy with something – don’t wait for someone else to make the change for you.

So every encounter that I have with a person at work (colleague, friend, patient, ect), or outside work, I try to make them feel understood, AKA – valued/respected/dignified. 2 days ago, I did a first day chat with a patient & at the end I said I was a student – and she said, “That explains why you’ve spent more time with me & listened to me.”  Time is extremely fraught in all of our lives, but we must make time to try to understand people and their journey.

So that’s why I decided to make my Radiotherapy app (RADcare). To hopefully help patients and their careers understand what’s going to happen, be able to feel like they can take more control by knowing what’s going on and have good, coherent, interactive and personal information covering all aspects of their radiotherapy treatment journey.  I hope that by all of us having a better understanding, we can make time for the really important things. I hope the app will be really useful in the future, and really helps patients and their loved ones going through their journey, a better – less stressful – journey. (It’s worth pointing out here that the app is just an addition to a service & MUST NOT be used in place of information contact in person with healthcare professionals).

Living with an illness, or after, is really, really hard. Normal life is never normal again.  It makes changes – both psychological and physical – that you had never anticipated. But it’s not all bad. I now feel more empathetic to other struggles than I ever did before, I cry more than ever at injustices (not on you- so no worries), and I know now that time is what ever you make it – the days are long but the years are short.  It’s not about your grades, or your clothes, or car, or house. It’s about being with those who love you, doing what you love, and trying to be the change we need.

I hope I can bring big heart to every thing I work on. I especially hope I can achieve it with the app. Life is hard. And I wouldn’t have got here today – feeling extremely loved – without the support of all my amazing friends (you guyz!), course-mates, my mom & bro, my colleagues (NHS, uni, art, Doc/Fest- ect), my doctors & other healthcare professionals and everyone else.

Hope you can help me evaluate the prototype app soon! Much love, Smizz!

Everything is fragile.

Mid-20’s isn’t that old, but I feel like I’ve aged 2 lifetimes in the past 3 years. Maybe aging like that makes you look back a bit more. Just as you can see from my blog, my focuses in life have shifted; I’m not just looking for self-improvement in what I can change per-say, but  more to learn how to have grace in the parts of me that won’t budge, or have grace in things I can’t control right now.

One of the hardest parts of having to adapt to being a much slower, less  interesting and hardly a multi-tasker Smizz due to illness, is being observed 24/7. I used to invite people to watch my performance of trying to make it in the artworld— I’d post lots of things I’d make, constantly advertise myself – I kind of craved the attention— but I had no idea that it was going to open me up to some damaging mindsets. It now makes me feel like I need to be on top of my shit 24 hours a day, and I can’t do that anymore. Mainly because I’m either in bed (mostly), studying (secondly),  drawing, or out trying to live life (making up for 1 & 2).  I’ve been trying to learn the “It’s okay to say no to things sometimes. Because if you can’t say no, you can’t fully say yes”.

I’m no longer  living up to the persona I assigned to myself.  I feel like I’m not only letting everyone down who invested their time into me, but I’ve let it make me believe I’m letting myself down too.

So after feeling like I was going to die, and feeling really sorry for myself. After not having the mental /energy capacity to work on my own work, just enough to work on others (which has been/is amazing, and I needed it to survive- both mentally & financially). After seeing people who I admire and respect because of their vision & dignity, struggle in this world. After months and months and months of wishing I could be part of it,  I returned from this ordeal to resume work and rejoin the artworld, but  my membership had expired. I felt like the Artworld had forgotten about me. And everything I made and saw seemed like trivial bullshit—because quite a bit of it was/is (not all of it). Disingenious money grabs.  all speed was stupid.  Some things was just despicable, because it stole the dignity of everyone involved. We deserve better.

This is harsh criticism, and way super cynical, but it is how I felt at the time. These feelings have eased a lil bit, but I’ve always had a critical view on the Artworld because I’ve always been coming from a disadvantaged point anyways. And I’m a Marxist. However, noticing the bad also makes it easier to see and notice the good. Many of the things I love about the artworld are still here, and doing maybe better than some of the crappy parts of the Artworld.

 

My friends, Lesley Guy & Dale Holmes did this super cool show  at Bloc Projects in Sheffield about Pizza  a few weeks ago. It was so good I went home & ordered a Domineos.

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One of the best artists out there Gregory Sholette is trying to crowd-source this phenomenal project. http://www.indiegogo.com/projects/imaginary-archive-kyiv –  Which is an Imaginary Archive – a collection of fictional and real documents from a past whose future never arrived of Ukraine. It’s such a special and important exhibition, and so necessary at this time, so if you can find the time/$ to support it, that would be amazing!

 

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I really, really, really want to see William Powhida’s phenomenal “overculture” show at the most AMAZING gallery Postmasters NY, that just opened this week. Powhida’s practice is about helping us see how fucked up things are and to inspire us to strive to a world of justice, supporting (art) world which encourages criticality and  risks.  it’s basically the (art)world we all really want, yet too scared to bite the hand that feeds us.  I keep putting (art) like this, because the artworld is just a microscopism of the ‘real’ fucked up world. Every problem within the artworld is a problem within non-art-related society. Mainly because it’s the same shitty force that drives both: greed and value in the banal, and unethical under-valued/under-paid labour in order to make $$. When in actuality, there’s significant power in our dark-matter-ness if we realize it, together.

 

My focus  and definition on “progress” made it easy  for me to forget that you can turn around from traveling in a wrong direction, and return to the place where things last felt right. You can go back. Now I feel like I’m starting from the beginning with my personal art practice, and it felt like a failure. But I’m slowly accepting that sometimes going back is sometimes progress.

A few painful years has taught me 1 of the important lessons about life: you only become bulletproof when you refuse to disguise your injuries. The wounds are a gift: You learn how to accept help, and better yet, how to better give it. This in turn is another reason why I’m studying again, to emulate the best care & understanding I kind of know that the patient needs. Remember: if you need help. Ask for it. We can’t do it all alone. All the time.

Life is now somehow more precious and less. I’m now back to my humble beginnings: To share what you know.

So that’s part of what I’ve been quietly doing/working on with F/O/R/C/E, a collaboration with Paul Harrison and a few others – >  forcelectures.org

Don’t wait for a life disaster to be the thing that spurs you into action. Everything is fragile and you are more resilient than you think.

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The Living Cube by Till Könneker

The Living Cube by Till Könneker

I moved into a apartment studio without storage room. So i made a minimalistic cube design with a shelf for my vinyl collection, my TV, Clothes and Shoes. On the cube is a guest bed and inside the cube is a lot of storage space. Remo fromwww.holzlaborbern.ch transferred my sketches very beautifully. My friend and Photographer Rob Lewis made this great photos. Info via Behance

Dude. This would be a DREAM come true if i could have one of these in my tiny-ass-bedroom at home. I think THIS IS THE FUTURE. New Bucketlist Item – I WANT 2 MAKE MY OWN 1 OF THESE!

Smizz’s Bucketlist – Revisited – Nearly a year on

In a few months time, it will be a 2 years anniversary of when I got told that I might have cancer. A Lymphoid Malignancy to be exact. I’ve spent many, many posts dedicated to trying to get my head around not having an ultimate certainty that most 24 year olds have.

When you’re young, you kind of feel invinsible. Not in a Superman way – but in a – Oh yeah, let’s buy concert tickets for next year, or in 5 years we’ll buy a house sort of invincible. You make promises to do something awesome in the near future. In my case – I bought some plane tickets to NYC. My Doctor told me that I needed to cancel my trip.

And sure , the future is of course a never existing thing – a constraint of a “big picture” and no-ones future is ever a certainty – as you could get hit by a car or be in a natural disaster. But I’ve always thought I’d never make it to 30. I’ve always had this feeling that I wouldn’t live to be old. You can ask any of my  friends from high-school, I’ve always said this. But I always assumed it would be a tragic bike accident or something, not an illness. I mean, it still could be a bike accident that kills me off, but you know?

What does this mean for me? This past year has just ruined my bigger picture over-all. But that’s not a bad thing necessarily. I think sometimes it’s better to focus on smaller pictures, and so that these smaller pictures can eventually add to a collage of a more interesting big-picture.  “I’m on a roller coaster that only goes up, my friend.”

There is no shortage of fault to be found amid our stars. So, guys, I’m here for a good time, not a long time!  Last year I was worried that I wouldn’t make it back to the USA again. I panicked and made a Bucketlist.  And so here it is, this is an very incomplete, living list, re-evaluated, re-wrote. Over time, I’ll update it to add things I’ve forgotten and to cross off things I’ve accomplished.

  1. Show an internationally renowned gallery
  2. Get published in a nationally-distributed print publication
  3. Be on the cover of a major magazine
  4. Stay in a new country/ one place for a full year
  5. Own a genuine William Powhida artwork
  6. Learn to properly carve wood
  7. Skydive
  8. Run a marathon (practicing 5-10k runs in prep for this)
  9. Sail South America
  10. Learn to cook (I can obviously cook, but I wanna be amazing & i’m beginning to learn the craft)
  11. Speak Italian fluently (Started this)
  12. Live in Italy for a whole year
  13. Get a drawing on the cover of the New Yorker
  14. Surf
  15. Go to the Big Sur
  16. Ride the trans-siberian railway from China to London
  17. Create something that touches a hundred million people
  18. See actual lava
  19. Experience not being super scared to check my bank balance
  20. Create a piece of life-saving research
  21. Actually finish University & get a job straight away into Radiotherapy & Oncology/Medicine
  22. Give away a billion dollars
  23. Learn to make proper awesome cocktails
  24. Teach/Learn at an Ivy League University
  25. Sit in the Oval Office
  26. Meet Obama
  27. Buy a round of drinks for an entire bar
  28. Visit all of Thailand
  29. Visit Japan, specifically Tokyo
  30. Visit NYC
  31. Visit California
  32. Live in Brooklyn
  33. Live in Brooklyn again and for longer!
  34. See all 50 USA States! (up to 42 currently)
  35. Visit Patagonia
  36. Teach at University level
  37. Write a sit-com
  38. Be in a movie
  39. Live in LA or San Francisco
  40. Have my work printed in a Taschen Published book
  41. Work for a cool start-up
  42. Bike  at least 1 part of the Tour De France
  43. Find Love
  44. Visit Hawai
  45. Travel First class on a plane & not pay to do so
  46. Do what you love
  47.  Love what you do.
  48. Go to New Orleans
  49. Draw a TEDx Talk
  50. Sleep on a beach & look at the stars
  51. Go to a SNL live recording
  52. Skateboard down a San Francisco hill.
  53. Go to Bali
  54. Learn to Snow Board
  55. Live in Canada
  56. Make a positive difference
  57. Do something worth-while for others
  58. Private
  59. Private
  60. Private
  61. Private
  62. Private

Things that should always be strived for:

-Find true-love

– Be loved

Be a better person

– Be thankful for every day and all the amazing friends I have.

– Do what you love, and LOVE What you do (continue)